“Eye has not seen, nor ear heard, nor have entered into the heart of man the things which God has prepared for those who love Him.” 1 Corinthians 2:9

Saturday, July 30, 2016

Developmental Profile? Pfffft!

For just a moment...for just a breath.....the sadness was there.

Even the most basic question had to be answered “NO":
(When your child is held in a sitting position, does she ever try to reach for something with her hands?)
The more “advanced"questions:
(Does your child consider what friends want to do when planning activities with friends?)
She is so very far "behind" in all categories. 


It's true.
It's obvious.
It cannot be denied.

But then....she makes eye contact with me.

She holds her head up independently.....with only support partway up her torso. 

She listens closely when her brother who is on vacation calls and asks to talk to his “Boo".

She absolutely ROCKS her new glasses!

Victoria has had so many challenges.
The first eight years of her life were a struggle just to survive another day.

She had no life in her body..but more disturbing...she had no life in her eyes.

Since we have adopted her she has had a variety of health issues.
(We still have no definitive answers …particularly to the source of the last infection that kept her in the hospital for six days.)
The difference?….She has been loved through each and every challenge.
She has had family with her every moment.
So, though she is still off the charts on the DP-3, the progress she has made is astounding.
I do know with utmost certainty that a Developmental Profile test
will not ever come close to accurately assessing how hard this girl works for every gain that she makes, nor will it ever take into account the things she has experienced those things that would make you and I curl up and die. 
She is a fighter.
She is an overcomer.

And her journey has just begun.

Saturday, July 16, 2016

Sweet News

We are home.
Victoria is so very happy!  
She is squealing and smiling...both because she feels better but also because she knows her family and she knows she is home.

It is very sad to watch her become more and more withdrawn the longer she is in the hospital.  The nurses are amazing. The doctors are thorough, professional and kind, but it is a very difficult place to be. 

Little Miss is a super challenging "stick" so we lost three IV's in seven days and we had to do countless blood draws. We were admitted because of high fever. Since Victoria became septic a few months ago we do not mess with high fevers.
Tests showed she had a pretty severe infection...somewhere.
That became the conundrum!

Chest X Ray, echocardiogram, kidney, liver, spleen and bladder ultrasounds, stool samples, urine cultures, maybe her broken femur (healed) had became infected.....radioactive bone scams showed nothing (we scanned her whole body to rule out bone infection anywhere).

So...we are home.
No answers.
Enjoying family and praying for no recurrence.

We have a couple of big surgeries (cleft palate and hips) upcoming....but for now we want Victoria to just get to be a kid.  So we are taking a couple months off...and trying to stay out of the hospital.

                                  THANK YOU photo prayers-4.jpg

Monday, July 11, 2016

In and Out and In Again...

It's been a long few weeks since I posted.  My friend and advocate Frankie visited from out of state.  It was so fun to be able to spend a little time together and she LOVED hanging out with her Bulgarian babies. 

Victoria has healed from her broken femur and the spica cast was removed. Look how much she has grown and changed!  

Ella had surgery to remove her tonsils and adenoids and then, a couple of days later, she had to be readmitted. She's doing better now.

A few days after we were released, Victoria began having unexplained fever and fussiness, so we are now admitted with her.  

Same hospital, same view, different child, same loving Savior watching over us all. 

Please be praying that they can find the cause of her fever and she heals.